All Kinds of Heroes

Bad at this..

2010-06-02T22:34:00.001-07:00

I have names to be added and updates to make... I am only one person... I am so sorry if I haven't added your child yet. I believe they belong on this list with my whole heart, because they are amazing little heroes.... Forgive this lady and her short coming brain...

Miss Madison

2009-11-22T21:52:00.000-08:00

Welcome Miss Madison to this list. She is a darling 17 month old sweety waiting for a heart. At birth she was diagnosed with Wolf Parkinson White Syndrome (WPW) and Hypertrophic Cardiomyopathy. My thoughts are with this family as the wait is on. If you would like to check in on the progress of Maddison their blog is listed at the side as cooperandmadison.blogspot.com

Miss Kylee

2009-11-19T08:15:00.000-08:00

I just added Miss Kylee. She has Down Syndrome, Tetralogy of Fallot, and Common AV Canal defect. Whew, so much for one little person. She is scheduled for possible surgery in the first part of Jan. Her cute momma wants to find others who might have her same work up, so you can share ideas....

Follow her at http://www.kateandkylee.blogspot.com/....

Little Julianne

2009-10-22T16:14:00.000-07:00

Little Julianne was born just a few days ago and is going in for surgery tomorrow... She was born with Ebstein's Anomaly. You can follow her on wordpress at under "neck on wood"..

Good luck tomorrow!!!!

We wish you well and a super speedy recovery so that your family can have you home to munch on soon.

Little miss Ellie

2009-08-29T01:35:00.000-07:00

Little Ellie is now on our list to follow... She has has a rough road with Neuroblastoma and heart troubles too... We wish you the best... You can check in on Ellie by clicking on "bless her heart"...

Camden

2009-06-02T15:11:00.000-07:00

Camden is with us now, He was born with Aortic Stenosis and an Enlarged Aorta. He is a sweet three months old.. Hope things are well...

Angel Hope

2009-04-08T14:05:00.000-07:00

We have had Angel Hope's family on the list for a while, now you can see her little picture trail to the side as Angel Hope..... Her little family is amazing and her little/bigger brothers are as sweet as can be....

My little friend Kaidence

2009-04-08T11:52:00.000-07:00

April is Give life Month... I wanted to share a little about Kaidence... I love this little girlie and her momma. We have spent many hours at the hospital together...

http://www.youtube.com/watch?v=P3eB81HO_Oc

Paul Cardall

2009-04-08T10:31:00.000-07:00

I realize that this blog has mostly children, but I am sure you will all be uplifted and excited to have Paul on our list. He was born with Tricuspid atresia and is waiting for a new heart. He is a very talented musician, has been fighting his CHD for 36 years and has a beautiful family. If you see this Paul, welcome!

Welcome Baby Grant

2009-04-04T18:46:00.000-07:00

I just added baby Grant to the list. He has been diagnosed with HLHS and just got moved to the third floor... Yippie!!! We are so glad to have him... His blog to watch out for is Grants Journey...

Oh and P.S. Nobody ever told be I spelled hero's wrong... Oh well too late now!

A few sublte Changes!!

2009-04-04T18:34:00.000-07:00

Hey all- I wanted to do a few of the suggestions. So as you can see now most everyone is on the bloglist. This will update as you update your blog. I do have a bunch of families that are private/non-rss feeds. So I left them to the side as our heroes. If you have questions email me. One thing that I don't like is that I can't specify the reason for them being on the list, eg... Gator is HLHS... But I know that by now you have picked your faves to keep up with.

I do want to say that I will still make personal welcomes when I add someone so that you know what the diagnosis is. I will also indicate what the blog name is so you can be sure to keep an eye out for them....

Hey List-ers

2009-03-21T10:04:00.000-07:00

Hey everyone who checks out this bloggity. I was wondering if I should do more than just post list updates. I am not sure what everyone would be interested in seeing. I have been collecting poems that I have run across and I have also thought about posting some of the articles out there... But maybe I should add a couple of contributes... If you are interested in sharing your child's story or if you are one of the many adults who are fighting still. I would love to hear your story and I can just upload it to the blog via an email. Or I can add you to write things too... Let me know!!!!

Eddie

2009-03-21T10:02:00.000-07:00

Welcome welcome. I just got your mom's email and I am happy to add you to the list. I love those sweet blonde curls... I would never cut them if I was your mommy.

Braden

2009-03-16T21:06:00.000-07:00

Sorry it has taken so long to add Braden- I am happy to have him part of our list and wish him the best.

Mr. Mason Man

2009-02-01T21:23:00.001-08:00

Mason, Sorry it took me so dang long to get you on our list. I have been a major slacker... Glad you're here now...

Birklee

2009-01-21T13:39:00.001-08:00

Birklee- So happy to have you! Glad you are doing better after your Glenn!!!

Quinton

2009-01-05T19:41:00.000-08:00

we have now added Quinton. His blog is private, so if you would like to check in on how he is doing, simply email Amy, Quinton's mommy at bakerca1205@hotmail.com

Little Miss Juliet

2008-12-27T21:38:00.000-08:00

Welcome Juliet, Your momma says your doing great right now!!! Way to go! Glad to have you here...

Paisley

2008-12-11T09:57:00.000-08:00

This little munchkin is now on our list... Thanks for inviting us to follow her story.

Katie

2008-11-29T21:51:00.000-08:00

Wow!!! Look at this darling little girlie.... I am really excited to have her on the list.

Preslie

2008-11-21T14:52:00.000-08:00

I already love this little girlie and I haven't even met her.... She share's a name with my little sister, so I knew she would be darling as HECK!!!!! Check her out!!!!

2008-11-18T18:22:00.001-08:00

http://

Grab This Button
Could this sweety be any cuter??? Simply yummy.......She is waiting to come home to be with her big sister Darah (To the side) and brother Connor....

2008-11-16T22:04:00.000-08:00

The new movie above is from Roman's momma...Thanks K... I have seen it floating around and thought it was darling...

Kylie

2008-11-03T20:49:00.000-08:00

Our little friend Kylie is one our list. She is a sweety, hands down... Their blog is private so if you know them and want to keep up, just ask for an invite....

Howdy Peyton!!!

2008-10-16T20:36:00.001-07:00

We have another sweet Heart named Peyton, who is now on our list... I have such a sweet spot for HLHS babies...

Angel Seth

2008-10-15T10:21:00.000-07:00

Sweet Angel Seth has been added to our list... What an amazing little boy! Please help me remember him and send his family who misses him a message!!! I can only imagine the hole in their own "hearts" right now...

Colin

2008-10-07T20:01:00.000-07:00

Welcome Colin- I am so excited to be watching your story... I have a sweet spot in my heart for HLHS kiddo's. I so glad you are so big and doing so well right now...

Two cute Sweet "HEarts" to add to our list

2008-09-30T19:49:00.000-07:00

You can now check in on Miss Grace B. and also Mr. McKay...

Miss Megan

2008-09-02T13:55:00.000-07:00

Megan is now on our list and at this moment is prepping to recieve her new heart.... A million thanks to donor families who give us a second chance at life....

Micayla

2008-08-11T15:25:00.000-07:00

Cutie Micayla is on our list... Her mommy is also helping to make a list that supports families specifically with DiGeorge/ VCFS so if you are interested in checking it our go to http://vcfsfamilies.blogspot.com

Thanks Sherri for the information.....

2008-08-09T11:11:00.001-07:00

Help Mercydez
This is a cutie patootie in our group. Her Aunt (I believe) is organizing this for her. Thought I'd spread the word.Fundraising Yard/Bake SaleAn “above-average” yard sale…for an “above-average” girl!When: Saturday, August 237:00am – 5:00pmWhere: 1365 West 1250 South, Orem(Intersection of Geneva Rd & University Pkwy)Seven-month-old Mercydez was born with CHARGE syndrome. CHARGE syndrome can include congenital heart disease (CHD), deafness, blindness, cleft lip & palate, kidney problems, developmental delays, and more.The purpose of this fundraiser is to help this wonderful, local family pay their substantial medical bills and ongoing expenses. With your help, we can ease their burden. All proceeds will go directly to Mercydez’s parents to assist with her care.This will be a one-of-a-kind yard sale organized by loving friends, co-workers, and family! If you’re interested in donating items/baked goods to be sold, time (helping before/during/after the yard sale or any other fundraisers we organize in the future), or if you are interested in donating money please send an email to donate2mercydez@gmail.com .

Angel Issac

2008-07-27T21:32:00.000-07:00

Our sweet little friend has left the arms of his family to go to the welcoming arms of his Heavenly Father. Issac passed away Sat night and earned his wings... I was able to meet his family and see the joy that Issac is in their lives... Issac was born in January and only got to spend nine treasured days at home.... Jessica and Paul, we are thinking about you and the girls always..

Caden C

2008-07-23T20:39:00.001-07:00

Yeah for Caden... Welcome to our list... We can't wait to get to know you better....

Do you want to add your picture?

2008-07-22T14:33:00.000-07:00

If you want to add a picture of you Kiddo to the map please feel free... we LOVE IT!!!

We also just wanted to throw out that I am still able to add anyone who wants to join our list...

Miss Bela, and Davy

2008-07-11T14:38:00.000-07:00

I added Bela and Davy to our list... I have been reading up on Bela for a while and here my brain had left me again and I hadn't added them to our list... I am so glad you have helped me yet again.... Hurray for sweet Bela and Davy I am so excited to be one of you "fans"...

Nevaeh k, Stella, Kate, Zachary

2008-07-11T11:05:00.001-07:00

I added you to our hero's list..... If it is a problem let me know.... I am so happy to have you

Angel Eden

2008-07-05T15:17:00.000-07:00

Eden Lost her fight with her CHD early this morning... I have been watching this family for some time.. Her story is so amazing, as is all our little hero's.. You can read about her on her blog to the right...

Carla and Nevaeh

2008-07-04T15:11:00.000-07:00

Carla and Nevaeh are now added to our list... We are so excited to have them... Carla is darling and Alex is already crushing on her... And Nevaeh is snuggly inside her mommy and waiting for her grand entrance into this world... We are so happy to have them...

Caden K

2008-07-01T16:14:00.001-07:00

Caden is on our list... Thanks for being a part of our group....

Angel Charlie

2008-06-26T16:35:00.000-07:00

Charlie lost his fight with his CHD today.. I am not sure of any details... I know that he is a sweet little boy who will be welcomed into the arms of all the little heart angels waiting for him.. Our thoughts are with his family at this very difficult time...

2008-06-26T09:43:00.001-07:00

We have some new families added and we just keep growing.. It makes me happy.... I love to see the blogs with different things that make them so neat... I am also happy to see that our support group for families that have a child(ren) with a chd, is growing... If you haven't had a chance to join or see what our group talks about go to http://intermountainhealinghearts.org

2008-06-24T13:19:00.001-07:00

I looked back a little to see that Luke has either HLHS or HRHS.... Sorry....

Welcome to the list!!!!

2008-06-24T13:05:00.001-07:00

I just want to say that I finally got my act together and added three new families to our list... Darling Luke (not sure of your CHD) , Cute little Mary Clare-HLHS and Sweet Nathan TOF... I can't wait to keep up with your families....

Check out this movie

2008-05-30T13:48:00.002-07:00

I finally figured this out.... CHECK IT OUT!!!

CHD Movie

2008-05-29T21:30:00.000-07:00

http://www.onetruemedia.com/share_view_player?p=53c5a3dce2574b02f3359f" quality="high" scale="noscale" width="600" height="526" wmode="window" allowFullScreen="true" name="FLVPlayer" salign="LT" flashvars="&p=53c5a3dce2574b02f3359f&skin_id=601&host=http://www.onetruemedia.com" type="application/x-shockwave-flash" pluginspage="

Anyone can add...

2008-05-26T11:19:00.001-07:00

If you know anyone who you would like to keep up on, or who would like to be added to our list...PLEASE shoot me a comment... We just added Ashton...Hey there!!!!! Thanks ahead of time..Brynn

Update

2008-05-08T08:26:00.001-07:00

Alice's test came back and she has been diagnosed with CHARGE syndrome... Our thoughts and prayers are with the family and sweet little Alice... She has a lot going in her favor now, but news like this tends to make us all readjust our thinking and emotions. We all know we don't want our children to hurt in any way.

I added a few new hero's to the list check out what is happening with our friends.

Not much to be posted here

2008-05-06T09:03:00.000-07:00

I think I found a way to make that huge list of links accessible to everyone and not take up so much room on the family sight... So I won't be writing much here just keeping the list of our heart hero's so you can link to it!!!! Hurray!!!!!